An inspiring look at a young man who embodied the best of human nature, touched millions, and worked tirelessly for peace-told through the eyes of the woman who raised him.
Oprah Winfrey has called him "an inspiration," Maya Angelou saw him as a kindred sprit and fellow poet, and Jimmy
Carter described Mattie Stepanek as "the most remarkable person I have ever known." When Jerry Lewis received his
lifetime achievement award at the Oscars, footage of Mattie played behind him. Five years after his death from a rare
neuromuscular disease, Mattie is still being celebrated for his indomitable spirit and message of hope. Now the world
will get to know the full story of the poet, the peacemaker, the philosopher, and New York Times bestselling author in
the first book to share all of the intimate details of his incredible life.
In Messenger, Mattie's
mother, Jeni Stepanek, recounts the years before Mattie got sick; how he handled the loss of his siblings from the
same disease he had; his decision to spread the message of peace and hope; and how, when he became a celebrity,
Jeni helped to keep him grounded, and remember to embrace being a kid. Including never-before- seen poems,
journal entries, photos, and correspondence with famous friends, Messenger is an inspirational book about a
life lived to the fullest.
"Not a day goes by when I don't receive e-mails and letters saying that Mattie's
poetry and speeches are not enough-people want to know about him directly and intimately. I am thrilled to have
joined with Dutton so that I can now tell all his fans the full story behind my son." - Jeni Stepanek,Good
Morning America.
Chapter 1
Sunrise on the Pier
. . . The sky grows
Shadows, rising
With the passing of time. . . .
The sky sighs,
Ebbing with tides
Of pre-dawn nothingness,
And yet,
Seas of everything created,
Tucked into waves. . . .
The sun rises
Caressing spirits
With the passing of time
And the promise of hope
And the belief of life
That gets better with age
As we edge into
The day that once was
Our distant tomorrow.
— From “Night Light” in Reflections of a Peacemaker: A Portrait Through Heartsongs, page 29.
Nell was getting more and more soaked each time the water sprinkler
circled back around. She had fallen off the boardwalk into the beach
grass on her way back from the ice cream shop and was now unable to
get up, afraid she might have broken her leg. She also had a painful abrasion
on her forehead.
Still, she was laughing to herself. While she waited for help getting
to the emergency room, the sprinkler system came on automatically,
and she knew the sight of her sitting there dripping wet was ridiculous—
even more so because Mema, who had gone with her for ice cream,
kept running off each time the ch ch ch ch ch of the sprinkler circled
around. Mema had wanted to stay right by Nell’s side while others in the
group went for help but had her hair done that day and didn’t want it
ruined. So she would jump back with each spray, apologizing from a
distance about her visit to the beauty parlor. This made Nell laugh even
harder.
We were toward the end of our annual week at the beach on North
Carolina’s Outer Banks. Mattie and I had been coming every year since
1992, when he was two, courtesy of my dear friend Sandy Newcomb
and her parents, Mema and Papa (whose real names are Sue and Henry
Newcomb). They always stayed in a two-story condo right by the water—
a crazy flophouse with red and purple walls and more air mattresses and
foldout sofas than bedrooms—and they had us down for a week or more
every July.
The summer of 2000 had been better than ever in the sense that all
our kin were able to make it for at least a couple of days. By “kin,” Mattie
and I meant the family with whom you didn’t necessarily share blood but
with whom you’re related through life. These relationships were always
wonderful to him, whereas blood relations could be sweet or sour.
Our “immediate kin” consisted of Sandy, who by that point had become
more like a sister to me and like a favorite aunt to Mattie; Sandy’s
daughters, Heather and Jamie Dobbins, and her son, Chris Dobbins (all
were teenagers or young adults then); and Mema and Papa. We playfully
called this group the “Step’obbi’comb Fam”—combining Stepanek, Dobbins,
and Newcomb into one “kinship unit.”
Some “extended kin” were also a part of this beach vacation, including
Mattie’s best friend, Hope Wyatt; Hope’s mother, Susan (Susan’s husband,
Ron, on a peacekeeping mission in Kosovo at the time, was the one
who brought Mattie the United Nations flag); and Nell Paul and her
husband Larry. Sandy had met Nell in a La Leche class when they were
both expecting their first children, and through her I had become good
friends with Nell, too. Mattie called us the Three Granny’olas.
It turned out Nell hadn’t broken her leg after all. And although the
gash on her forehead was a nasty one, it wasn’t anything time and some
pain medication wouldn’t heal.
Nell had been a source of humor all week. The night we arrived,
she explained that she was having health problems that made it difficult
for her to stand on her feet too long. But she offered to help Sandy make
a chicken tetrazzini dinner that night by calling out, without a hint of
irony, that at least while sitting at the table, she could very easily “cut the
cheese.” When we all burst out laughing, she responded with some
amount of confusion and indignity that “not being able to walk around a
lot has nothing to do with my ability to cut the cheese”—which only
made us roar.
Nell grew up a preacher’s daughter in the South in the 1940s and 50s
and simply didn’t know certain idioms and other common wordplays. We
had such fun teasing her all week about the T-shirts you see at the beach
with suggestive double entendres and such. We entitled that vacation
“The Education of Nell,” playing practical jokes on her as we went. One
day I looked sidelong at Mattie with a mischievous gleam and said to her,
“I suppose you’ve never heard the phrase ‘duck on the head.’” Mattie
went along and called out, “Mom, I can’t believe you’d even tell her that.
That’s, like, rude.” I then said to Nell with feigned indignation, “Never
mind, we aren’t going to go there.”
Later in the week, Mattie and Hope staged a tattling scene wherein
Hope accused Mattie of saying “duck on the head,” and Mattie “defended
himself” by responding that he was only telling Hope why she
shouldn’t say it, and I “scolded” both of them. Nell felt terrible. She had
been repeating the phrase here and there in the belief we had been pulling
her leg and thought it was she who got the kids going. We didn’t
disavow her of this notion. Then, on one of our last days there, we all tied
tiny stuffed ducks to our heads and went around the side of the pool
where Nell was sitting, quacking at her.
Mattie was having the time of his life. Chris would throw him into the
deep end of the pool, and he’d soon be bobbing to the surface, yelling to
be thrown in again. He also began interviewing all the kin for a fun book
he and I were envisioning, The Unsavable Graces. He wrote goofy poems
and went to the top of a giant sand dune called Jockey’s Ridge. He went
with me to Mass recited in Spanish, which we did every summer; doing
so allowed us to really think about the essence of God in rituals rather
than just recite prayers from rote. He and Hope, both blond, ambushed
Chris, also blond, while Chris was trying to flirt with a pretty girl in an
orange-pink bikini, saying, “Daddy, we’re hungry, and Mommy said it’s
your turn to fix us lunch.” Chris later married that girl, Cynthia, and Mat-
tie was best man at their wedding.
Mattie’s disability had progressed since the previous summer, but we
were used to that and always found ways to accommodate his condition
without letting it ratchet down the fun. For instance, when Mattie was
six and seven, he could walk to the pool, do backward flips into the water,
swim laps, and dive down ten feet to the bottom to grab pennies. As long
as he remained attached to a tank of oxygen, he would be fine. We would
rig a twenty-five-foot tube that connected the nasal cannula in his nostrils
to the tank so he could swim anywhere in the pool and never be
without the supplemental oxygen. When he wasn’t in the water, he would
drag the tank behind him on a cart, sometimes using his cannula and
tubing as a jump rope and letting other kids take turns as he swung it.
When Mattie was eight, he needed a wheelchair with the oxygen on
the back of it to get to the pool but could still move around pretty well
once he was in the water. The summer he turned nine, he went from one
oxygen tank to two, but as long as he had the extra oxygen, he didn’t have
the frequent feeling that he was suffocating.
This time around, Mattie was too weak to swim much—he would
come up gasping—but he could still enjoy Chris throwing him into the
deep end. To compensate, we bought a ten-foot blow-up alligator fl oat
that Mattie could hang on to in the water. The object was always to continue
the fun no matter the challenge. There was always another solution,
another fix.
Granted, this year there had been changes that were more marked
than in previous summers. At night, Mattie now had to be on a BiPAP
machine, short for bi-level positive airway pressure. It involves wearing
a mask over your nose or mouth or, in Mattie’s case, both, that helps you
breathe easier when you’re short of breath. Mattie also had to wear it
during the day if he felt exhausted, such as right after pool time. This was
in addition to the pulse oximetry and cardiorespiratory monitors to which
he was connected anytime he was sitting or lying at rest since the day
he was born, which would let us know if his heart or lungs weren’t
doing what they were supposed to. The dysautonomic in dysautonomic
mitochondrial myopathy means things in the body that should happen
automatically don’t always. For example, when someone switches from
physical activity to sitting, the heart self-regulates by beating more slowly.
But Mattie’s heart could overshoot the mark and start to “forget” to keep
beating while he was at rest rather than simply slow a bit; the fine-tuning
just wasn’t there. If his heart rate fell too low, the machine triggered an
alarm that would signal someone to jiggle him or provide other tactile
stimulation or remind him to breathe more deeply for a minute until his
heart could receive the “signal” and get its pumping back in sync with his
body’s needs.
Understanding this condition and how to deal with it came slowly,
across the lifespans of all four of my children. The medical community
didn’t even have a name for it until my two eldest had died. It was
simply called dysautonomia of unknown cause, and early on I was told
that subsequent children would not be affected. Not until Mattie was
two years old and my third child was months from death did doctors
understand that it was a condition of faulty mitochondria—an essential
component of every cell in a person’s body.
I was actually diagnosed first—with the adult-onset form—then the
children. Two years later, after my third child died and Mattie was only
four, I was in a wheelchair. Now we were all too familiar with the condition’s
devastating effects.
We were used to adding supports and medical machinery to compensate
for the detrimental effects of this progressive condition, and then we
would keep going. But that summer, the changes weren’t just in the
BiPAP machinery or even in the fact that Mattie didn’t have the energy
to really swim. Hope, who was two years his junior, was now several
inches taller than he was. Mattie’s shoe size, in fact, was the same as in
kindergarten—a child’s 11. Growth taxed Mattie’s autonomic system,
and somehow his body knew that. In addition, he could not walk across
the beach to the ocean. Mattie didn’t need his wheelchair because he
was incapable of walking; he needed it in large part because he would
tire so easily.
In previous years, he had the energy to walk across the sand to the
waves so he could bodysurf (always attached to his oxygen). He had to.
We didn’t always have a special beach wheelchair that could get traction
over the sand. But this summer, after the first day of walking out to the
water, he said he couldn’t go back; it took too much out of him.
We did have a rented beach wheelbarrow that got me down to the
waves that first day, and I told him he could hop on while someone
pushed. But he said no. He was aware that he lacked the energy to
handle the waves. And he knew he wasn’t up to getting overheated on
the hot sand; his condition also compromised his temperature stability,
so that once he became too hot or too cold, his body had a hard time
readjusting to normal.
Mattie didn’t have the strength to climb Jockey’s Ridge, either, a massive
sand dune in the middle of the Outer Banks that offers stunning
views of the barrier island chain from the top. Park rangers drove us up
in a jeep that year. He was still his charismatic self, chatting up the rangers
and people who had hiked up to fly kites. But instead of turning
cartwheels at the top, as he had done the year before, he sat on a lawn
chair.
We treated all of Mattie’s limitations as challenges to be gotten around
rather than game changers. Of course anybody could see that they were.
But my aim was to help Mattie live on a day-to-day basis as though the
assaults on his body could always be taken in stride, that any new weakening
or new machinery were just part of life rather than shifts that
called life into question. I even managed to convince myself much of the
time that no symptom of illness was something a combination of medical
help, ingenuity, and prayer couldn’t overcome.
Mattie was ahead of me, though. Even on the first day of that vacation,
he let me know. For fun, he went around asking everyone why they
had come to the beach house that summer, either videotaping their responses
or writing them down. It was all note-taking for the Unsavable
Graces book. Everyone gave silly answers. Sandy said she came to learn
Braille for a course she was taking and not get sick; the summer before,
she had come down with an awful case of bronchitis and was laid up
most of the time. Nell said she had been planning on thinking three deep
thoughts but had already done that in the car so was at a loss as to what
she was going to do the rest of the week. Chris said he was a plumber
and had come to fix the sink, code for being on the hunt for pretty girls.
Then I turned the tables and asked Mattie what he was there for,
figuring he’d give as ridiculous an answer as everyone else. But he just
looked at me and said, “I really need to consider the meaning of life this
summer, because life is changing.”
Caught off guard and wanting to keep away from that subject, and not
wanting to spoil the others’ fun, I chided him. “Mattie, we’re all clowning
around, and you’re being serious and philosophical.” Immediately, I saw
the hurt in his eyes—and have regretted to this day the words that fell
out of my mouth at that moment. He was headed someplace else, even
on day one.
Mattie remained ahead of me, however. After that exchange, he kept
what he needed to say bottled up throughout the week, making sure his
words mirrored the general festive mood. He jumped into as much physical
activity as he could handle. He participated in the practical jokes.
He played board games with the rest of us. Even when he had to take
breaks more frequently than he used to, he would beg off joining in some
group fun as casually as possible and go to his room to read or write poetry
(and then end up falling asleep, even in the middle of the day—his
fatigue was that overpowering). Not that he didn’t truly enjoy himself to
the hilt. He did. But it wasn’t until our sunrise on the pier that he spoke
his heart.
Sunrise on the pier was a ritual Mattie and I engaged in, without fail,
the morning of our last full day at the beach every year. It was our thin
space. A preacher once described thin space to me as that place where
your spirit and God are in closest contact. Generally, we’re all aware we
have a spirit, an essence, that’s deep inside us. At your thin space, the veil
separating your essence from your being becomes transparent enough
that the spirit becomes undeniable. Instead of being a silent voice, your
spirit more or less shows itself to you; you know it intimately rather than
simply being aware of it.
All of the beach was thin space for Mattie and me. Where we stayed
on the Outer Banks was not an arcade-laden, honky-tonk resort spot with
some sand and waves that happened to be nearby. It was where, on an
island jutting into the ocean, the sea met the sky and the earth; past,
present, and future converged in an absence of measured time; and what
we felt actually became something we could behold.
I had been coming to this stretch of beach since 1976, long before
Sandy invited me to join her on family vacations. I didn’t meet Sandy
until 1989, but by coincidence, we had both fallen in love with the same
place. After my first two children died, I even pitched a tent down on
the sand near the pier to try to catch my spirit up to my life. When you
lose a child, your body keeps moving, but your spirit doesn’t want to
come along. It drifts behind. At the beach, my spirit told me there’s still
more there. It allowed me to feel the essence of my children and the
presence of God, which put it back in sync with my body and allowed
me to go forward.
Now the beach, this pier, was the place where my spirit and Mattie’s
could talk to each other directly, without anything muffling what got said
or what got heard, even between parent and child.
It never mattered whether it was a cloudy sunrise and the sun didn’t
show. An unrise, as we called such mornings, was just as significant.
We always came down to the pier before five A.M., at least a full hour
before the sun actually rose. We had to start when the stars were still out,
when it was still dark and time was taking a last look backward before
moving forthward, as Mattie called it.
That morning, no breeze stirred as we made our way to the edge of
the pier. The two of us wheeled out together across the warped wood,
slowly, slowly, sounding a soft, almost rhythmic bumpedy-bump on the
weathered planks, so we wouldn’t be jolted out of our seats.
Mattie’s ability to handle the chair on the rickety wood slats was
something of a small marvel, considering his wheelchair beginnings. Fine
and visual motor skills were never his strong suit, and he had to learn
little by little how to navigate with the chair’s joystick. When he first
started using it, I took him to the first floor of a mall department store
and had him circle around while I waited at the juncture of mall and
store. I told him not to move out of anybody’s way, to just stop where he
was if someone came toward him, because he wasn’t ready to back up or
steer to the side.
After a few turns around the bank of escalators that stood in the
middle of the floor, he said he had the hang of it and was ready to “step”
aside should anyone come toward him. I said okay, with misgivings, and
the next thing I knew he was wheeling gleefully from the store into the
mall exclaiming, “Mom, Mom, I did it! I backed out of someone’s way!”
At the same time, however, alarms were going off. It turns out that in
backing up, he had hooked on to a lingerie cart and had left the store
with a bevy of unpaid lady’s undergarments in tow.
Because the pier was so long and because we had to go so slowly, it
felt like we had been rolling hours out to the middle of the ocean by the
time we reached the edge. In previous years, we’d make our way to the
end of the pier holding hands and laughing, but not that day. In the dark
that morning, Mattie started out quiet.
We began our talk the way we always did, with Mattie asking about
his sister and brothers. “Tell me about Katie,” he would implore. “Tell me
about Stevie, about Jamie. Tell me about how Jamie took care of me, how
I took care of him and became the big brother to him when he got sick.”
Mattie used to “read” to Jamie. Mattie couldn’t speak when he was a
toddler because the trach tube he had in his neck at the time limited the
use of his vocal cords. But he got around it by communicating with
American Sign Language. Jamie, for his part, couldn’t see what Mattie
was signing because two years before he died, he lost meaningful use of
his vision. Yet Jamie would sit there and smile as Mattie signed for him
the illustrated stories in children’s books. They had found their own thin
space between them.
These reminiscences were crucial to Mattie. When he was about
seven years old, he started crying hard, seemingly out of the blue, and
when I asked him what was wrong, he told me he was beginning to lose
his memories of Jamie. He remembered sitting in Jamie’s bed and squeaking
his little yellow caterpillar in his brother’s ear after Jamie had lost use
of his sight, Jamie smiling in response. And he remembered the two of
them sitting in each other’s chairs for fun and my reading to the two
of them together, and Jamie’s little white casket with the contents I put
in that he would take with him to Heaven—but not much more, and it
frightened him as well as saddened him to be losing touch with memories
he held sacred.
He was saddened, too, about not having known Katie or Stevie, and
would tell me on the pier that he missed not ever getting to hear them
laugh, or to kiss or touch them. In 1993, when Stevie would have turned
six, Mattie told me he did not know whether to sing a nursery rhyme for
the baby Stevie was when he died, or to talk about fishing and other life
discoveries that would have interested the little boy Stevie would have
become by then. Mattie was three at the time.
When Mattie finished talking about his siblings, he asked me what I
wanted to be when I grew up. It was part of our pier ritual, our way of
moving by degrees from what was to what will be. And I always told him
the same thing—that I wanted to be eighty-three. He would laugh and
respond by saying that you couldn’t be a number, and I’d answer, “Okay,
then, I want to be a beach chair philosopher, thinking deeply by the
ocean and sharing thought-provoking stories.”
This would lead to my asking Mattie what he wanted to be. In years
past, Mattie always talked about wanting to be a daddy—not simply
a father, who wasn’t necessarily close, but a daddy. He was going to
have seven children and had already named them. The oldest was a
namesake, Matthew Joseph Thaddeus Stepanek, Jr., who would be called
Tad. Second would come Kathryn Hope, to be called Katie Hope after
his sister, Katie, and his favorite word (and also his friend Hope, who
he was fine with being his children’s mother). Third and fourth would be
Steven Blaine and Jamie, after his brothers, Stevie and Jamie. Since
“Jamie” was not just his brother’s name but also one of Sandy’s daughter’s
names, she’d be a girl. Her middle name would be Margaret after his
great-aunt Margaret, who died around the time he was born but had
been very good to me while I was growing up. Mattie liked that he and I
played Parcheesi with the same dice Margaret and I had rolled when I
was a child.
Fifth came Patrick Noah (“Patch,” for short), followed by Theresa
Rose, or Tessie, which was going to be Mattie’s name had he been a girl.
Mattie planned on giving Tessie to me, and when I’d tell him his wife
wasn’t going to like that, he always explained that he’d make it up to her
by letting her name the seventh child whatever she wanted, with the
proviso that if she didn’t choose a name within thirty days, the right to
give a name would revert back to him, and in that case he would choose
Sophie and Sadie since the youngest children would then be twin girls.
Pure fun as all this was, the idea of Mattie’s fathering children wasn’t
totally in the realm of fantasy, and he knew that. Mitochondrial diseases
like his are invariably handed down through the mother because virtually
all of a person’s genetic code for mitochondria comes from the egg—
there’s essentially none in the sperm. Thus, Mattie knew that if he made
it through adolescence—and one doctor had even told him that adolescence
would be a make or break point for him because the body goes
through so many changes at that time—he could have children and not
risk passing on his disease.
But as night shifted toward dawn that morning on the pier, Mattie
didn’t talk about having children. Instead, he went “off script” and said
that sometimes he worried about what he would do if I died before him.
He told me that if something happened to me first, he’d go into his room
and stay there until he could come out and cope, that he’d end up having
to shave a very long beard because that’s how long it would take him to
be able to move on. But he would move on, he said, because “you can’t
lie down in the ashes of another person’s life.” He talked about how after
a time it would be okay to laugh again, to play with friends, to have fun.
Of course I nodded in agreement while he spoke, and did what a
mother does in my situation—told him that I’d stay here as long as I
could. While a prognosis is something of a moving target, the one I had
been given left me with a vague “six months to ten years.” But Mattie
wasn’t looking for an answer from me. He was setting me up.
“If I die first,” he said, “you have to do the same thing—move on—
because I could go before you, Mom.”
I wanted to pull Mattie away from this line of thinking. His whole life
was spent on the edge, yet we had always managed to skirt it, to fi nd
some semblance of stable footing and keep our focus on daily living.
Now here he was looking over the edge, but he was just a boy; it was my
responsibility to keep him looking in the other direction.
“Mattie,” I joked with him, “you have at least until you’re seventeen.
We’ve had the signs.” Mattie was born on the seventeenth day of the
month, in the seventeenth minute of the seventeenth hour (5:17 P.M.),
measuring seventeen inches and weighing 2,017 grams, and I had always
used that to calm his fears—not to mention hang on to it myself as if it
were a prophecy. Mattie nearly died minutes after he was born. Seventeen
years of age sounded pretty good.
He wouldn’t let it go, though. “Maybe I wanted to have kids,” he said,
“because you want to leave behind lessons, leave behind everything that
matters to you. That’s how you touch the world. But I have to reconsider
what it’s like to leave a legacy. I think my life is the opposite of what it
says on your coffee mug.”
On my coffee mug it said, “I may have to grow old, but I don’t have
to grow up.” Mattie said, “I think I may have to grow up without growing
old.” He went on: “I think we’re going to have to define differently
what I’m going to be. We’re going to have to define my growing up
differently.
“I want to be remembered as a poet, a peacemaker, and a philosopher
who played,” he added after a pause. He had mentioned those things
before in various contexts, and even at the pier in prior years. But that
was the first time he had strung them together in a definitive way, underlined
them, so to speak.
I didn’t want to hear Mattie creating an epitaph. At the same time, I
had to let him talk. His mortality was facing him, and I couldn’t pretend
otherwise. I had already shortchanged him earlier in the week.
Now I understood why he reacted so strongly a few days earlier when
Nell had to go to the emergency room. He had been really worried, crying
and praying for her, afraid that something was very wrong. I felt I
understood at the time—Mattie’s whole life was filled with loss, with
visits to emergency rooms that ended with long stays in the hospital and
life-altering compromises. But what I realized on the pier was that even
while I was aware he was losing ground, he was sensing it in a way I
wasn’t able to see. As close as I could possibly be, I was an outsider looking
in.
It wasn’t as if once he brought up living a truncated life, we abandoned
all that was ritual in our visit to the pier. We still spoke, as we did
every year, about choice—about how you can’t choose whether you’re
going to have a disability, or your mother is going to be in a wheelchair,
or your parents are going to be divorced, or you’re going to be so without
means at times that you have to stand in line for handouts at a church
food pantry. Mattie lived a life in which these and so many other things
happened that would never have been anyone’s choice that we made it a
point to list the things you could choose: whether to talk about someone
behind his back, whether to be your best self and do your best work,
whether to focus on what you do have instead of what you don’t, whether
to go forward despite challenges or sink into despair.
We also assessed our week as we always did, reviewing all the practical
jokes and shenanigans with everyone. We talked, too, about Mattie’s
poetry, which was so important to him.
But there was a new urgency about it, about the poetry and about the
future. He said he needed to get his books of poems published. He had
written several volumes of Heartsongs poetry by that point, “Heartsong”
being a word he coined for himself to get at a person’s essence—the
longings and hopes and feelings that both describe and stir each of us. It
is our charge, Mattie said, to take what we wish for in our Heartsong,
package it in the best way we can, and offer it to others. In giving the gift
you want most, he felt, you get it back. Mattie’s package was his poetry;
his Heartsong, a passion for hope and peace that grows from happiness,
in a life that medicine kept dictating held no promise of hope.
Mattie also said he needed to talk to his role model, Jimmy Carter, to
find out “if I’m doing peace right,” and that he needed to get his message
of hope and peace on Oprah so that it could be spread.
He had been talking about these things for a while, but previously
they had seemed like the kind of yearnings all kids feed off of sometimes.
Now they sounded like goals for an adult who needed to figure out how
to make them happen.
“Mom,” he said, “I need to live everything that matters to me quickly.
I need to do everything I want without growing old. If I can get my poetry
published, it’ll be like I’m having children.” Mattie and I had talked in
previous years about a person’s creating something that lasts beyond his
life span—his echo, his silhouette. That day, he was addressing it more
as a plan than a philosophical musing.
Then he said, “I don’t think I’m ever going to be back here. March
thirtieth is a dark day for me.”
I felt a kind of nauseating ache start to rise. My daughter, Katie, was
only twenty months old when she died, but the day before, she put away
all her toys and refused to play with them. “Bye-bye,” she said. “All
through.”
“What are you talking about, Mattie?” I said. “You’ve always been on
machines. There are tons of things that can still be done.”
“No, Mom,” he answered. “I don’t see next July. I don’t see this pier
in my future.” The pier marked time for us. It was a kind of punctuation
mark to our lives, a breather to go over where we were at that point and
how we were going to move forward, how we were going to celebrate. It
was where we planned our “what nexts.”
The pit in my stomach rose higher. “You’ve got summer camp next
year,” I told him, although it was more like pleading. “You’ve got holidays.”
After a moment, I added, “Do you think you’re going to die on
March thirtieth? Because we’ll watch. We’ll take extra care to watch you
around that time.” I had debated whether to say it out loud, considering
that if the thought remained unspoken, I might be able to hide it, keep
it from having a chance to become reality.
“I’m just saying I can’t see past March thirtieth,” he said. “I can’t fit
anything after that into a context.”
“Don’t you see anything at all after that day?” I asked. “Easter? Your
birthday?”
“Maybe Thanksgiving at Sandy’s house,” he answered finally. “But I’m
not sure if I’m seeing it, or just wanting it.”
“Well, what do you see? Do you see people? The table? Do you see
Christmas after that?”
“Mom, please let’s hush. Let’s just sit here. I have to memorize this.”
“But, Mattie, we’re videotaping this,” I said. Mattie always liked to
tape a minute of sunrise, shut the camera for ten minutes, then tape
another minute so that everyone back at the beach house could see what
they had missed.
“No, I’ll remember what this looks like, what it sounds like. I have to
memorize what this feels like,” he countered. His voice had no trace of
sadness or melancholy. It was more like an expression of “Wow, I’m really
going to miss this,” an anticipatory loss.
By now the sun was almost fully risen. It was one of the gorgeous,
brilliant sunrises, not at all a gray and muted shift into the day but a
ruby pink with shades of orange. Mattie commented that it looked more
like a sunset than a sunrise—a gift from God, he said, because it combined
his favorite color, the color of sunset, with his favorite time of day,
sunrise.
I stopped trying to reassure myself, and we just sat quietly and looked
out to the horizon. I put my hand on top of Mattie’s and told him I loved
him. We said that to each other a hundred times a day, every day, and we
meant it; it wasn’t just words. But it especially needed to be said then.
Everything looked as wonderful as it ever did—blue, cloudless sky;
sun sparks dancing on the waves; strong, bright light. We even began to
see movement in the water—dolphins. It was a common sight on the
Outer Banks, but one that always delighted us. Except this time we saw
water spouting up. It wasn’t dolphins but whales! Water was spouting out
of their blowholes—calves and their mothers. We could even hear their
beautiful, haunting song.
We watched the whales as they moved farther and farther away from
land and finally swam out of sight. Then we sat just a minute more before
slowly turning around to roll back.
The next morning, after a last day of diving into vacation giddiness
with the others, we loaded our things into the van and headed for home.
It was Mattie’s tenth birthday.